NOMID is the most severe type of CAPS. It is clear to parents of children with NOMID how much they suffer. From the moment they are born, it is a constant battle to keep NOMID from getting worse. Treatment can help symptoms to some degree, but they never completely go away.

The Facts on NOMID

NOMID stands for Neonatal-Onset Multisystem Inflammatory Disease. NOMID can also be called CINCA, which stands for Chronic Infantile Neurological Cutaneous Articular Syndrome. NOMID/CINCA is the most severe type of CAPS.²

NOMID Symptoms

People with NOMID/CINCA almost always start having symptoms from birth.² A doctor may diagnose NOMID/CINCA quickly in a newborn because symptoms are often more noticeable than in FCAS or MWS.^8,9

Other information resource for CAPS patients

Other information resource for CAPS patients:
www.rarediseasecommunities.org/en/ community/caps

Locate your nearest CAPS Specialist Centre